After fourteen years with too numerous to count misdiagnoses, this is my daily journey living with an unknown disease that has made me fully physically dependent, living by the help from my family, friends, and beloved service dog. It is how I have chosen to define myself to remain whole in spite of it.

Me, Not My Illness

Me, Not My Illness

It would be easy to construe, based on the name of my blog, that my health / physical limitations defined my world. That, if we were meeting me face to face, it would be my primary topic of conversation.

If I have been successful in my efforts, than I have to say, that is not the case. In fact, you would have to ask me specific questions, when I’m in the right frame of mind, to get real answers. Why? It’s not a state secret; I  want to be more than my physical limitations, more than the obvious and not so obvious health snafus.

“All the world is a stage,” according to Shakespeare, and I endeavor for my illness to be only the scenery in which I make my entrance and exist. Or, it could be the backstage drama, such as in Noise’s Off. (If you haven’t seen this play or movie, it’s a great laugh.) Perhaps this is a ridiculous goal, but then again, I like ridiculousness.

In this spirit, here are a couple of things about me, and not my crazy ill-stricken body:

1) I love to swear. Really swear. Like a  sailor’s mouth swear. It makes me gleeful. It’ often surprises people because I appreciate articulateness. I don’t swear at people (only rarely), or things, rather just because. It started when I could no longer walk on my own, and well, since I haven’t walked on my own again, never felt the need to try and stop.

2) When it comes to the World Cup, I am all over it. Watching the games, keeping track of who is ranking where, game times, etc. If we’re watching a game together and Argentina is playing, I pity you if you try to cheer for the opposing team. I mean, it’s only fair warning. Having lived in Argentina for nearly a decade, they absolutely have my unyielding futbol support. (In case you’re wondering, I do enjoy the winter Olympics, though find my support varies by sport.)

3) Ironically, I love to exercise. As in, hard core, make your muscles quiver, and wish you never got up in the morning, exercise. I have been that way ever since I was little. When I was 5, I volunteered to be my father’s personal trainer…I was forced to “stand down” when my mom took pity on the training regimen I put my Dad on.

4) Argumentative? That would be me. For the joy of it, I could expand as to why I am, or why I only think I am. In rare favor of brevity, I feel it’s enough said.

5) Favorite show to watch when I am utterly depleted: Top Gear (British version) and The Grand Tour. I love cars, I love to imagine doing crazy stunts for the fun of it, and I love the smack-talk. It has me laughing, giddy, and ready to go again in. The only thing that tops this is when you’re watching it with someone incredulous that you think it’s marvelous…Perfection.

The Woman Who Changed My Life

The Woman Who Changed My Life

My "Christmas Wish" Results

My "Christmas Wish" Results