After fourteen years with too numerous to count misdiagnoses, this is my daily journey living with an unknown disease that has made me fully physically dependent, living by the help from my family, friends, and beloved service dog. It is how I have chosen to define myself to remain whole in spite of it.

Camelot, The Star

Not long ago I received a query email through my blog, asking if I wanted to take part in a television documentary series episode. Yes, I blinked. And then I blinked again. Then, I read the next sentence. Apparently the episode was on service dogs, and they wanted to chat to see if I would be interested.

I didn’t scream. I didn’t drop my phone as if it had just metamorphosed into an animal. In fact, I didn’t do anything at first. Then, after a while (though not too long, naturally), I asked my mom if she would object to my speaking with the producer and seeing where it went. She was floored, blinked, and said, “Sure. Why not? We’ll just see where it goes.”

So, very politely, I formed my brief reply stating that I was interested, and gave them my number. For no other reason than needing a distraction, I very promptly took Camelot outside, and intentionally left my phone inside, (just in case). To my shock, I had a missed call by the time I came back in, asking me to call the producer back.

Taking a not too deep breath (so I didn’t start a coughing fit), I bravely hit the number to call back… And the rest, is, well, history. Talking Camelot up is, well, one of the easiest things I can do. Mainly because he requires no exaggeration. He’s not perfect. But he’s everything I need him to be. And he’s saved my life multiple times, so there’s that too.

The next thing I knew, we were scheduling a film shoot to be within the next few days, and I was left with the task of trying hard not to think about. In fact, because it was coming together so quickly, and having zero exposure to such things, I had thought it would be just a couple of people coming (2, maybe 3), and they would be filming on their iPhones or small hand held cameras.

Thus, when the morning arrived and we had multiple cars of people, and bins of equipment with really big cameras, it was my turn to swallow again. The experience though was, in a word, fun. The group of six was so nice, interesting, and enjoyable, they made it easy to forget that I was being filmed and simply enjoy the experience. They were so great with Camelot, allowing him to warm up to the cameras and get used to being filmed, (especially since he had just had minor surgery the week before), there was no unnecessary stress.

Did it make me exhausted? Well, yes; of course. But I expected that. And while it took me a couple of weeks to fully recover from the 7 hours of my film experience and Camelot’s day of stardom, it was completely worth it.

The air date, I have just been notified has been put on hold… So this story is To Be Continued. But here are a few of the behind the scene shots!


Traveling Bags, Priorities

Traveling Bags, Priorities